The heartrending story of a midcentury American family with twelve children, six of them diagnosed with schizophrenia, that became science's great hope in the quest to understand the disease.
Don and Mimi Galvin seemed to be living the American dream. After World War II, Don's work with the Air Force brought them to Colorado, where their twelve children perfectly spanned the ba...
The heartrending story of a midcentury American family with twelve children, six of them diagnosed with schizophrenia, that became science's great hope in the quest to understand the disease.
Don and Mimi Galvin seemed to be living the American dream. After World War II, Don's work with the Air Force brought them to Colorado, where their twelve children perfectly spanned the baby boom: the oldest born in 1945, the youngest in 1965. In those years, there was an established script for a family like the Galvins--aspiration, hard work, upward mobility, domestic harmony--and they worked hard to play their parts. But behind the scenes was a different story: psychological breakdown, sudden shocking violence, hidden abuse. By the mid-1970s, six of the ten Galvin boys, one after another, were diagnosed as schizophrenic. How could all this happen to one family?
What took place inside the house on Hidden Valley Road was so extraordinary that the Galvins became one of the first families to be studied by the National Institute of Mental Health. Their story offers a shadow history of the science of schizophrenia, from the era of institutionalization, lobotomy, and the schizophrenogenic mother to the search for genetic markers for the disease, always amid profound disagreements about the nature of the illness itself. And unbeknownst to the Galvins, samples of their DNA informed decades of genetic research that continues today, offering paths to treatment, prediction, and even eradication of the disease for future generations.
With clarity and compassion, bestselling and award-winning author Robert Kolker uncovers one family's unforgettable legacy of suffering, love, and hope.
作者简介
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Robert Kolker is the New York Times bestselling author of Lost Girls, named one of the New York Times' 100 Notable Books and one of Publisher's Weekly's Top Ten Books of 2013. As a journalist, his work has appeared in New York magazine, Bloomberg Businessweek, The New York Times Magazine, Wired, GQ, Oprah, and Men's Journal. He is a National Magazine Award finalist and a recipi...
Robert Kolker is the New York Times bestselling author of Lost Girls, named one of the New York Times' 100 Notable Books and one of Publisher's Weekly's Top Ten Books of 2013. As a journalist, his work has appeared in New York magazine, Bloomberg Businessweek, The New York Times Magazine, Wired, GQ, Oprah, and Men's Journal. He is a National Magazine Award finalist and a recipient of the Harry Frank Guggenheim 2011 Excellence in Criminal Justice Reporting Award from the John Jay College of Criminal Justice in New York.
a heartbreaking story intertwined w research & debate on nurture vs nature abt schizophrenia (i think it's a combo effect). Don didn't realize his goals and Mimi was a perfectionist and a victim herse...a heartbreaking story intertwined w research & debate on nurture vs nature abt schizophrenia (i think it's a combo effect). Don didn't realize his goals and Mimi was a perfectionist and a victim herself. It was a time when people swept secrets under the rug instead of letting them out or seeking help (except sending Margret to the Garys).(展开)
很可能是2024年读过最震撼的纪实作品，现实恐怖版的《百年孤独》。主线围绕着家族悲剧展开，副线将时代发展下对于思觉失调的认知情况娓娓道来，面前的惨状绝不只关乎于父母双方的基因以及他们对孩子的教养方式，还与社会文化、医学水平、宗教信仰、性别关系等宏大的话题息息相关，其表现就是每个人都在受苦，但怎么也无法粗暴地揪出一个人为这苦痛担责。
一度看得崩溃，作者克制冷静的叙述方式和充满人文关怀的视角就尤为可贵...很可能是2024年读过最震撼的纪实作品，现实恐怖版的《百年孤独》。主线围绕着家族悲剧展开，副线将时代发展下对于思觉失调的认知情况娓娓道来，面前的惨状绝不只关乎于父母双方的基因以及他们对孩子的教养方式，还与社会文化、医学水平、宗教信仰、性别关系等宏大的话题息息相关，其表现就是每个人都在受苦，但怎么也无法粗暴地揪出一个人为这苦痛担责。
一度看得崩溃，作者克制冷静的叙述方式和充满人文关怀的视角就尤为可贵。在达成理解是种奢侈的环境下，那些始终在追求达成「理解」的人们使得结尾仍旧保有希望——不管是想要搞清楚发病原因的研究者，还是以爱与关怀帮助亲人、治愈自己的Lindsay。Biology is destiny, but we are more than just our genes.(展开)
魏二
中信出版集团2021版
沂溪风
中信出版集团2021版
幽默的忧伤
中信出版集团2021版
周止右
中信出版集团2021版
CactusWafer
中信出版集团2021版
赫拉扎德
中信出版集团2021版
1 有用 Ciao 2020-07-22 21:13:56
审读书稿时看的～一家人真心太不容易，数次被感动。佩服小女儿，能走出原生家庭又回过头去和原生家庭和解，太了不起。作者显然以精神分裂研究发展历程来带动家庭叙事，前半部分觉得妈妈问题很大，后半部分又深觉其不易。
6 有用 黄小白 2021-03-31 13:28:58
a heartbreaking story intertwined w research & debate on nurture vs nature abt schizophrenia (i think it's a combo effect). Don didn't realize his goals and Mimi was a perfectionist and a victim herse... a heartbreaking story intertwined w research & debate on nurture vs nature abt schizophrenia (i think it's a combo effect). Don didn't realize his goals and Mimi was a perfectionist and a victim herself. It was a time when people swept secrets under the rug instead of letting them out or seeking help (except sending Margret to the Garys). (展开)
1 有用 许三 2020-04-24 05:05:50
this will be a good companion book of a book on the discovery of the schizophrenia gene
1 有用 Anthony 2020-12-14 08:57:40
心理疾病的无知 弱势个体的消耗 看着一个又一个被压垮的家庭成员 观察连小说都不敢想的现实来做分析 又科学又有趣
1 有用 Viola 2020-12-02 22:26:49
感触颇多。
0 有用 乘风破浪的饼崽 2024-04-30 15:57:44 上海
很可能是2024年读过最震撼的纪实作品，现实恐怖版的《百年孤独》。主线围绕着家族悲剧展开，副线将时代发展下对于思觉失调的认知情况娓娓道来，面前的惨状绝不只关乎于父母双方的基因以及他们对孩子的教养方式，还与社会文化、医学水平、宗教信仰、性别关系等宏大的话题息息相关，其表现就是每个人都在受苦，但怎么也无法粗暴地揪出一个人为这苦痛担责。 一度看得崩溃，作者克制冷静的叙述方式和充满人文关怀的视角就尤为可贵... 很可能是2024年读过最震撼的纪实作品，现实恐怖版的《百年孤独》。主线围绕着家族悲剧展开，副线将时代发展下对于思觉失调的认知情况娓娓道来，面前的惨状绝不只关乎于父母双方的基因以及他们对孩子的教养方式，还与社会文化、医学水平、宗教信仰、性别关系等宏大的话题息息相关，其表现就是每个人都在受苦，但怎么也无法粗暴地揪出一个人为这苦痛担责。 一度看得崩溃，作者克制冷静的叙述方式和充满人文关怀的视角就尤为可贵。在达成理解是种奢侈的环境下，那些始终在追求达成「理解」的人们使得结尾仍旧保有希望——不管是想要搞清楚发病原因的研究者，还是以爱与关怀帮助亲人、治愈自己的Lindsay。Biology is destiny, but we are more than just our genes. (展开)
0 有用 起名困难症患者 2024-04-27 19:43:17 江苏
家庭故事与学术探索同步进行。我们对精神分裂症知之甚少，病人和其家人承受的痛苦超乎想象。读完以后印象最深的几个人，Mimi，Lindsay，DeLisi，Nancy。 We are human because the people around us make us human.
0 有用 H.Ash 2024-04-14 02:28:05 美国
好久没有读过这么好的书了。作者用旁观者的视角以中立、理性却又深负同理心的文字描写了一个精神分裂家庭的悲剧。其中穿插描写的精神疾病的研究发展进程更是让人唏嘘
0 有用 Renae 2024-03-29 19:01:59 澳大利亚
冷静自持的叙述，让我们看着Galvins一家慢慢绝望，没有煽情的文字，甚至没有烘托，但是Galvins一家的绝望就像是聋哑人溺水一样，silent death。这本书在讲诉Galvins一家的精神病史的时候，也展开了精神分裂症的研究史和社会画卷，非常有意义的非虚构。
0 有用 Re 2024-02-01 03:13:19 云南
震撼！